If you or someone you know is living with Rett syndrome in Fairhope, Alabama, there are a number of resources and services available to help. Rett syndrome is a rare genetic neurological disorder that causes serious disorders that affect almost every aspect of life. It is caused by a genetic mutation and is most commonly found in girls, although a growing number of men are now being identified. Living with Rett syndrome can be challenging, but there are many resources available to help those affected by the disorder.
The GOOD website provides information on disability issues that may be useful to those living with Rett syndrome. Additionally, there are clinics that specialize in Rett syndrome and can provide specific care for your child. Family empowerment representatives are also available to provide emotional support, information, and resources to families affected by Rett syndrome. The Alabama State Department of Education Transition Services provides transition services and laws for people with disabilities.
The Alabama Department of Senior Services also provides resources for people with disabilities. The Alabama Disability Advocacy Program (ADAP) provides legal services to Alabamans with disabilities to protect, promote and expand their rights. Visit the ADAP website at 1-205-348-4928 for more information. United Ability's Ability Clinic provides physical therapy, occupational therapy and speech therapy services, and has treated many children with Rett syndrome and are familiar with their specific needs.
The International Rett Syndrome Foundation (IRSF) is committed to taking a full-spectrum approach, providing solutions for all people living with Rett syndrome. The Alabama Early Intervention System (EIS) serves children from birth to 36 months of age who have a medical diagnosis that may delay development. Visit the EIS website at 1-800-543-3098 for more information. The purpose of this study is to advance the understanding of the natural history of Rett syndrome (RTT), MECP2 duplication disorder (MECP2 Dup), RTT-related disorders, such as CDKL5, FOXG1, and people with MECP2 mutations who do not have RTT.
Accelerate full-spectrum research to cure Rett syndrome and empower families with information, knowledge and connectivity. With the right resources and support, people living with Rett syndrome can lead a good quality of life. Living with Rett Syndrome can be difficult but there are many resources available in Fairhope, Alabama that can help those affected by the disorder. From specialized clinics to legal services, there are many options available for those living with Rett Syndrome in Fairhope.
The GOOD website provides information on disability issues that may be useful to those living with Rett Syndrome while the Alabama State Department of Education Transition Services provides transition services and laws for people with disabilities. The Alabama Department of Senior Services also provides resources for people with disabilities while the Alabama Disability Advocacy Program (ADAP) provides legal services to Alabamans with disabilities to protect, promote and expand their rights. United Ability's Ability Clinic offers physical therapy, occupational therapy and speech therapy services specifically tailored to those living with Rett Syndrome while the International Rett Syndrome Foundation (IRSF) is committed to taking a full-spectrum approach providing solutions for all people living with Rett Syndrome. The Alabama Early Intervention System (EIS) serves children from birth to 36 months of age who have a medical diagnosis that may delay development while Accelerate full-spectrum research works towards curing Rett Syndrome and empowering families with information, knowledge and connectivity.
With the right resources and support, people living with Rett Syndrome in Fairhope, Alabama can lead a good quality of life. If you or someone you know is living with Rett Syndrome in Fairhope, Alabama there are many options available to help.
