Family empowerment representatives are volunteers who provide emotional support, information and resources to families affected by Rett syndrome. Contacting them should be your first step. United Ability's Ability Clinic offers physical therapy, occupational therapy and speech therapy services, and has experience treating children with Rett syndrome. There are also clinics that specialize in Rett syndrome and can provide specialized care for your child.
The Kennedy Krieger Institute is one of 15 institutions in the United States that have been designated a Center of Excellence by the International Rett Syndrome Foundation. People with Rett syndrome need help with most daily tasks, such as eating, walking, and going to the bathroom. Alabama State Department of Education Transition Services, Alabama Department of Senior Services, and Alabama Disability Advocacy Program can provide information on transition services and laws. The guidelines for diagnosing atypical Rett syndrome may vary slightly, but the symptoms are the same, with varying degrees of severity. The Alabama Early Intervention System website (1-800-543-3098) serves children from birth to 36 months of age who have a medical diagnosis that may delay development.
Your child may be able to participate in studies and trials to advance the treatment and knowledge of Rett syndrome. If your child's healthcare provider suspects Rett syndrome after the evaluation, genetic testing (DNA analysis) may be needed to confirm the diagnosis. The Kennedy Krieger Institute, through its Neurology and Neurogenetics Clinic, is one of the few healthcare providers in the Mid-Atlantic that diagnoses and treats this syndrome. The Kennedy Krieger Rett Syndrome and Related Disorders Clinic offers specialized diagnostic and treatment services for children, adolescents, and adults with Rett syndrome and associated disorders. Because Rett syndrome can affect many different systems in the body, treating a patient with this disorder often requires the collaboration of a wide range of medical specialists.
Rett syndrome clinics understand the diagnostic criteria for Rett syndrome and are dedicated to identifying the diverse needs of people diagnosed with Rett syndrome. The Alabama Disability Defense Program (ADAP) website (1-205-348-4928) provides legal services to Alabamans with disabilities to protect, promote and expand their rights. The purpose of this study is to advance the understanding of the natural history of Rett syndrome (RTT), MECP2 duplication disorder (MECP2 Dup), RTT-related disorders such as CDKL5, FOXG1, and people with MECP2 mutations who do not have RTT. If you or someone you know is affected by Rett Syndrome in Fairhope, Alabama there are many resources available to help. From family empowerment representatives to specialized clinics that offer diagnostic and treatment services for children, adolescents, and adults with Rett Syndrome, there is help available. Additionally, there are studies and trials available to advance the treatment and knowledge of Rett Syndrome as well as legal services provided by the Alabama Disability Defense Program. For those living in Fairhope, Alabama who are affected by Rett Syndrome, there are many resources available to help them manage their condition.
From family empowerment representatives who provide emotional support and resources to specialized clinics that offer diagnostic and treatment services for children, adolescents, and adults with Rett Syndrome - there is help available. Additionally, there are studies and trials available to advance the treatment and knowledge of Rett Syndrome as well as legal services provided by the Alabama Disability Defense Program. At United Ability's Ability Clinic in Fairhope, Alabama they offer physical therapy, occupational therapy and speech therapy services specifically tailored for those living with Rett Syndrome. The Kennedy Krieger Institute is one of 15 institutions in the United States that have been designated a Center of Excellence by the International Rett Syndrome Foundation - providing specialized care for those living with this condition. The Alabama Early Intervention System website (1-800-543-3098) serves children from birth to 36 months of age who have a medical diagnosis that may delay development. Genetic testing (DNA analysis) may be needed to confirm a diagnosis of Rett Syndrome.
The Kennedy Krieger Institute's Neurology and Neurogenetics Clinic is one of few healthcare providers in the Mid-Atlantic that diagnoses and treats this condition. The Kennedy Krieger Rett Syndrome and Related Disorders Clinic offers specialized diagnostic and treatment services for children, adolescents, and adults with Rett Syndrome - understanding the diagnostic criteria for this condition. The Alabama Disability Defense Program (ADAP) website (1-205-348-4928) provides legal services to Alabamans with disabilities to protect, promote and expand their rights - including those living with Rett Syndrome. Through studies and trials available to advance the treatment and knowledge of this condition - those living with Rett Syndrome in Fairhope can find help.
